After four long weeks of lumping around a heavy and uncomfortable cast that disturbed his sleep and meant all water play was off-limits, Matt now has a new, light-weight and water-proof cast. Once again he braved the scary process of having a cast removed. By the time he was home it was all forgotten and Matt delighted in the new found freedom of movement.
Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.
Wednesday, December 15, 2010
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4 comments:
Yeah! I'm so glad he's healing well and pray he stays cast free for a very long time.
Both thumbs up for Matt ... and for Jacqui and Lloyd :)
Oh WOW! That cast looks so much better - lighter and more comfortable. Matt is obviously so much happier although he takes all these challenges in his stride and never seems too unhappy about anything! I'm so glad that it is healing well and that he will be able to enjoy the holiday - and bath! Such stunning pictures of Matt enjoying his cars.Enjoy your time away, hope you are all feeling better.
He is getting so grown up. Thank you so much for the card. It's hanging on my refrigerator. Such a sweet picture.
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