Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.
Monday, October 2, 2006
The KING of the Neonatal ICU
Matt was almost three times the size of all the other babies in the NICU – most children that needed special care were premature or tiny triplets.