Sunday, October 15, 2006

Taking it one day at a time

So my child has a medical label, Rubinstein-Taybi Syndrome. What does that mean? It could mean a whole variety of things – from mild learning delay to severe disability. No one can tell me the outcome – the story has not been written yet, the song has not yet been sung. There is so much potential, life, possibility all held together in the life of my son waiting to break out and open like a seeds waiting to burst forth from the pod, like house dogs waiting to go for their daily walk.

Yet all this potential is as fragile as a fragrance in the wind. All it takes to eliminate hope is to consider the “what ifs” of the future. What if he can’t speak? What if he can’t go to a normal school? What if he looks funny and the other children tease him? What if I die who will love him and hold him?

If our baby boy was born normal, would we worry about if he would become paralysed in a car crash at the age of 12 or if he would become addicted to drugs as a teenager, or if he would get cancer in his young adult years? No, with normal children you just look to your hopes and dreams for the child.

And so we choose to receive strength from God for what we have to face TODAY. And we have discovered something so amazing, is that God really does give one strength to deal with all the challenges that one faces at any one given moment. People ask us how we are coping, and we can truly say the burden has been light. That is because Jesus is carrying today’s burden, and we have promised ourselves that we will not carry tomorrow’s.

1 comment:

Anonymous said...

you guys are amazing - an inspiration to us all.