Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.
Tuesday, December 29, 2009
Thursday, December 24, 2009
Monday, December 21, 2009
We have been through a season of processing MANY emotions - last month we had a miscarriage when we were 10 weeks pregnant. We have worked through a lot of our feelings and are in a better place, and thus ready to share our experience.
Here is a poem I wrote as I reflected on it all:
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My little child
I never saw your face
I never felt your physical touch
But through your presence in my life
...through your little heart beating in my belly
You taught me so much
in the little time you were with me
You showed me where I have wounds
Places of pain that I have kept hidden
You helped me to bring them into the light
And to find healing
You showed me where I have dreams
Where I have hope
To have another child
To mother a little person
You showed me where I have fears
Uncertainty about my future
And how I will cope
And how Matt will cope
You showed me where I was holding on too tight
Where I was gripping with fierce control
To things that I cannot hold
Or determine
You inspired me
To face my fears
To choose hope
To choose trust
To release control
To let go and breathe
To give myself to my dreams
You showed me, as did Matt
That the only way to live this life
Is in Gratitude
I thank God for you
and for the 10 weeks you were with us
I will never forget you
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We have done some symbolic acts to help us mourn and also to help us celebrate life. The one was to buy a decorative wall-hanging for our garden. It is made of wire and it spells out the word TRUST. This reminds us that we are not in control of our lives, and we choose to TRUST in God. We trust that no matter what happens, He will be with us and He will provide us with what we need to stand.
Lean not on your own understanding
In all your ways acknowledge Him
and He will make your paths straight
Proverbs 3: 5-6
Sunday, December 13, 2009
Physio Update
These pictures were taking a couple of weeks ago at Matt's physio session. Just so you can see what he has been up to...
Matt enjoying moving the chicken in and out of the farm door.
Learning to move around corners, and putting "in" and taking "out".
Helping Pam to build a bridge using physio blocks.
Pushing the block forward bit by bit, and building the foundation
More building..including lifting heavy blocks. Fun, but hard work.
Matt makes a game of sliding down on his tummy. He found it hilarious.
Learning to walk up and down slopes. After a little help, Matt tries it on his own.
What would a physio session be without some water and shaving cream. Look at those beautiful hands.
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