I remember when Matt would scream at the sounds of waves, cling to me harder than a limpet when I tried to put him on the nasty sand, and shrivel up in protest should cold water slightly touch his feet (or hands for that matter). In the first few years of his existence the beach was a place of torture; now it is a place of play and exploration. Though that chilly water still remains uninviting, he is not afraid to test it out. I love thinking back and seeing how far we have come.
Check out the photos from this past weekend when we visited my parents who live really close to the beach. It was a sunny day, but being the middle of winter it was still cold.
Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.
Monday, June 11, 2012
Wednesday, June 6, 2012
From the mouths of children #4
"Matt is a prince"
Matt's teacher told me today that often she has some of the girls in Matt's class come up to her and tell her that Matt is a prince, usually accompanied with an expression of how much they like him.
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