Our SonShine

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.

Saturday, April 21, 2012

Matt's Easter - photos







Posted by Jacqui at 8:58 PM 1 comment:
Labels: Matt growing up, Photos

Wednesday, April 4, 2012

Brothers in the Bath




Posted by Jacqui at 8:44 PM 1 comment:
Labels: Being a big brother, Matt growing up, Matt's family, Photos
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Meet Matt

Meet Matt

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Contributors

  • Jacqui
  • Lloyd

Our posts are categorised for easy access

Being a big brother Being different Biblical Perspective Book Review broken limbs Childrens Sayings Dedication Service Drumming friendships Grappling with stuff inclusion Inspiring People Inspiring thoughts iPad Kids we'll remember Learnings Matt growing up Matt's family Medical Miscarriage Nicholas PECS Photos play Poems Pregnancy Quotes RTS Conference RTS Family in SA School Signing Talking Therapy Toilet Training Tough Times Video

Love

The Bible says that if we have not LOVE then we are nothing

"If I speak in the tongues of men and of angels, but have not love, I am only a resounding gong or a clanging cymbal. If I have the gift of prophecy and can fathom all mysteries and all knowledge, and if I have a faith that can move mountains, but have not love, I am nothing. If I give all I possess to the poor and surrender my body to the flames, but have not love, I gain nothing." 1 Corinthians 13: 1-7

nothing
nothing
We are nothing without LOVE

It does not say if we learn to crawl long after most children crawl we are nothing
It does not say if we struggle to learn how to speak we are nothing
It does not say if we grow up dependent on others we are nothing
No it says if we have not LOVE then we are nothing

This is helping us to free ourselves from worrying about Matt's development.

Rather, our goal is to let Matthew know he is
LOVED
And to help him unlock the deep well of LOVE that God has placed in his heart...
For then he will have LOVE and he will be something



Followers

Locations of visitors to this page

RTS in South Africa

Connect more with others who have family members with RTS. Find out more about what resources there are in South Africa. Visit the RTS South Africa website: http://www.rts-southafrica.weebly.com/

Our RTS Family in South Africa

  • Sam. Conqueror. Overcomer.
    Beware of the Afternoon Nap!
    5 years ago
  • Jodie Means Grace of God
    It's been a while
    14 years ago

Our RTS Family in the USA & Canada

  • New kind of normal
    6 years ago
  • This is our normal.
    Celebrating 18 years of marriage today!
    8 years ago
  • THE HAPPY ONES
    Another Graduate Reader!
    9 years ago
  • Farmer John Cheese and Other Joy
    Not Synonyms
    11 years ago
  • Showers of Blessings
    3 year later......
    12 years ago
  • Lilo and The Stitch
    Phone Photo Dump, Hawaii Version
    13 years ago
  • A is for...
    Gymnastics Girl!
    13 years ago
  • The Foley Four
    2012 Polar Plunge
    13 years ago
  • The Medrano Family
    So HAPPY!
    13 years ago
  • LittleGrabber
    13 years ago
  • The Adventures of Noah and Nick
    Reflections.
    13 years ago
  • Our Journey... Whats Next?!
    Back to School!!
    13 years ago
  • In The Grip Of Grace
    My first 5k is coming up!
    14 years ago
  • My RTS angel's story
    Forgot my sign in info!!!!
    15 years ago
  • The Inspiring Melissa!
    I've decided to blog . . . with a little help!
    16 years ago
  • The Oliver's Twist
  • Matthew’s Hope
  • Sawyer James Peacock

Our RTS Family in Australia

  • Clio & James
  • Our Case Place

Learn more about RTS

  • Rubinstein-Taybi Organisation
  • Special Friends Foundation explains RTS

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